Category Archives: Grandparenting Children with Special Needs

I Want a Perfect Christmas

Standard
I Want a Perfect Christmas

Christmas Morning.

When I write the words, I alternate between anticipation and dread.

I’ve shared childhood Christmas memories here before. Christmas was a very special day in our family. There was no other like it – the mood in the house was positive and everything else was put on hold for a day.

As a child I couldn’t have known how desperately my mother must have missed her extended family, more than a thousand miles away. My focus was appropriately narrow; as a child I saw only the joy of our celebration.

I’m not so naïve anymore. I’ve been at this “adulting” thing a long time. I’ve come to realize that there are not many “perfect” days in this life.

I’ve also realized that perfect is in the eye of the beholder.

My natural tendency is to catalogue all that is not as it should be, or as it once was. That tendency is from the pits of hell and will steal your joy, friends.

If I’m not careful, I’ll note all of the imperfections that surround my normal life and my special days. I’ll stay in a funk and wonder why people avoid my joy-sucking presence.

I have known some memorable Christmas mornings. It’s tempting to long for those days and to mourn their passing, comparing every celebration to that “perfect” one. (My memory is also remarkably selective!)

This Christmas morning, my sweet hubby and I will again awaken to a quiet house. Our children have been celebrating in their own homes for years, making memories with their children. I’m tempted to long for the “good old days” rather than embracing the peace that will fill our hearts as we enjoy what has become our “new” normal.

fullsizerender

This is a little glimpse into our Christmas preparations – a couple more to add, but I think you get the idea. Lots and lots and lots of joy when we gather!

My thoughts quickly turn to the widows and widowers who will wake up alone this Christmas morning; the single parent who is navigating the holidays for the first time since a divorce. I remember those in military service, on mission or even in prison. People are mourning legitimate losses all around us.

widow-813615_1920

Christmas is just another day for so many who are separated from home and family.

What about that little family on the first Christmas morning? Mary and Elizabeth spent months chatting as they anticipated the arrival of their baby boys. I’m pretty sure that not one time did Mary say “I hope I deliver mine in a stable, out of town, with no one but Joseph around to deliver him.”

The first Christmas was anything but perfect in my natural mind’s eye. I’m also positive that Mary didn’t “naturally” invite dirty shepherds into her meager labor and delivery spot with a hospitable heart. But in her joy, she was able to celebrate the delivery of the promised child. He was given to her, but she knew his life was significant far beyond that stable.

Mary’s joy was not hers alone. The joy of her son, the joy of her family, was to be shared with the world. He was also OUR promise. Jesus was Christmas; the fulfillment of the promise that we never have to be alone again.

The joy he brought is not fleeting, nor is it found in perfect moments. It’s in relationship with our perfect savior.

Before you read on….

If you are mourning a loss dear one, mourn it.

Cling to the one who knows your sorrow and feels it. His word promises that he knows your every toss and turn and he catches every tear. My heart aches for you; it is your loss that has allowed me to see the frivolity of my mourning over failed expectations.

I’m praying that God bends right from heaven and kisses your cheek.

If you are like me, fighting the urge to hope for perfection this Christmas season, go to the source of joy.

Accept no imposters, avoid the cheap knock-offs that the world is pushing on your Facebook news feed.

If you long for the joy of the “perfect” day, these verses are my gift to you.

The Lord has done great things for us, and we are filled with joy.
Psalm 126:3

Then I was constantly at his side. I was filled with delight day after day,
rejoicing always in his presence,”
Proverbs 8:30

A cheerful heart is good medicine, but a crushed spirit dried up the bones.
Proverbs 17:22

But the angel said to them, “Do not be afraid. I bring you good news that will cause great joy for all the people. Today in the town of David a Savior has been born to you; he is the Messiah, the Lord.” Luke 2:10-11

And last but not least….

“I have come that they might have life, and have it to the full.”
John 10:10

 Merry Christmas, friends. May your life and your joy be full.

lorraine

 Please visit and “like” the Grace and Graffiti Facebook page here.

And remember, it’s nice to share with your Facebook friends!  

facebook_like_logo_1

 

Proceed to the Route

Standard
Proceed to the Route

The sun was already low on the horizon as I choked back tears and hugged her. I had something I wanted to say but I knew that with one word would come a torrent of sobs. The last thing I wanted to do was make this more difficult.

I closed the car door and backed along the fence line. Through tears I drove away. “Call Mike on mobile” I sobbed to my car. The hands free feature dutifully dialed my husband and I poured out my heart as I drove along the now familiar highway.

It had been a week since I arrived, ready to relieve Nana for a few days. Momma was at the hospital hours away, attending to the newest arrival. With six children at home, she called for help.

But now Momma was home with the baby and things were settling into the new normal. It was time for me to go.

The heart is complicated. It can be so divided at times. I desperately wanted and even needed to get home. My job was waiting; my hubby had endured back to back absences during a recent business trip and this week with the grands. It was time to go, and yet my heart longed to stay.

And to further question my desire to stay, it had been a tough week. I have a new respect for moms of big families, especially when there are lots of littles.

I had barely arrived when a stomach virus struck. Each night, a different child woke with cries of “I frew up”. Showers, linens changed and comfort doled out, I collapsed on the air mattress in the boy’s room and dared the guinea pigs to wake me with their nocturnal shenanigans.

Every day, before first light, the house was awake with sounds of children. J was in his bed, reciting his schedule for the day and using every word in his vocabulary. Keep talking little buddy…I need coffee. Sweet EB was already standing in her crib, clutching her comforter, pillow and a stuffed Minnie Mouse larger than her. I put my arms around the bundle and went to the kitchen urging her to whisper, a skill she has not yet mastered.

As I walked through the living room, there sat G – completely dressed, including his newsboy hat. A “man” of few words, he gave me a nod as I passed. By now I could hear E calling from his crib. He and his sister would want their milk and Miss P, the only one with a schedule to keep, was still deep in her princess sleep. The oldest of the lot was sleeping soundly, a tween getting his growth sleep.

I pray we made some good memories. I have some great ones and I also was reminded of life with littles.

Toddlers must be fed but won’t necessarily eat.

When you hear a toddler say “Bye, Bye Puppy” you’d better run for the gate.

I discovered that a four-year-old can, in fact, give himself a toilet swirly.

A puppy can chew up a shoe faster than you can say Amazon Prime.

When a child says “all done” it might mean:

  1.  I want a cookie
  2.  I want down but if you throw this away I’ll be back in five minutes demanding it or
  3.  Stand back, I’m about to hurl.

There is nothing like burying your face in the tiny curls of a grandchild, even in the middle of the night when you are desperate for rest. I knew that my days there were few and I made a point of enjoying those moments.

I also caught myself hollering. A lot. At the dog, at the child who was feeding his dinner to the dog, at the pair of vandals who found the one and only stray marker and were about to deface the walls of the living room.

I think you get the idea. Even when the Momma returned home, this mother’s heart was drawn to help. I truly wanted to be in two places at once.

As I poured my heart out and drove up the highway, I began to notice informational signs that were completely foreign to me. The cities listed were not in the direction of home. My sweet husband gently suggested I might be going the wrong way.

I hung up and opened the Maps app on my iPhone. I had made this drive many times during my daughter’s college years. How could I be lost?

navigation-1048294_1280

I typed our home address in the app and started again. As I did, nothing looked right to me. My internal compass continued to indicate that I was headed the wrong direction. The GPS? I stared at the blue dot and all that I could discern was my current location. That was not helpful! I could look around and know where I was. The obvious question was how do I get to where I want to be???

I turned the car around and immediately, my Australian navigator said “Proceed to the route”. Through tears, I shouted at him “I can’t see the route! Why doesn’t this thing show me a bigger picture?”

I couldn’t get my bearings. I knew the direction of home and I was sitting on the side of the right road. All that I needed to do was get on that highway and drive south, but when I did the landscape wasn’t familiar. I had clearly lost my bearings and my instincts were failing me.

After an hour of driving in circles, I gave in. Over and over, the familiar voice had repeated “Proceed to the route”. I needed to listen to that voice. I finally put all of my faith and trust in the satellite that could see me, even when I had no idea where I was.

I proceeded to the route and eventually I recognized familiar landmarks. I was on my way home.

The next day when I was less stressed and more rested, I understood where I had gone wrong. I had started my drive at the north end of the city; all of those other times I was south of town when I started home.

My heart quickened a bit as I thought of how often I look around and decide that I know exactly what I need to do next. I press on, even when God’s voice is clear. “Proceed to the route.” But Lord, I say, none of this looks or feels right to me. I am sure that I know the right way to go.

I proceed to go in circles, wasting time and resources, only to finally stop and choose to listen and follow his lead.

Oh Lord, when I get anxious and go in the wrong direction, nudge me until I proceed to the route that leads me to your best. Thank you for the assurance that you never lose track of me.

Where can I go to get away from your Spirit?
Where can I run from you?
If I go up to the heavens, you are there.
If I lie down in the grave, you are there.
If I rise with the sun in the east and settle in the west beyond the sea,
even there you would guide me.
With your right hand you would hold me.
Psalm 139:7-10 NCV

Proceeding by grace,

lorraine

I’m Way Too Busy for You!

Standard
I’m Way Too Busy for You!

 

Don’t you just love it when you ask someone how they are and they quickly respond “Busy!”? There are times that I walk away from that person, feeling that I’ve been an unwelcome distraction from the important stuff that just lagged behind because they slowed a bit to respond to my question.

I absolutely understand that often people are truly busy. Everyone has a lot going on.

I have some little grandchildren who are BUSY. On a recent visit I followed one toddling little munchkin along a trail of pint sized clothing to find that he had opened a dresser drawer and was methodically removing all of the carefully laundered, folded and matched up tops and bottoms and scattering them about the house.

I tried, to no avail, to interest him in play with age-appropriate, entertaining toys. He preferred running amuck and creating havoc. He is the cutest little mess and I love him!

Ellie and Eli

As I’ve thought about my penchant for overscheduling, overcommitting and overextending, I keep going back to that toddler’s mess. I wonder if that is how my life looks to my heavenly father as he observes me dashing from one thing to another rather than settling down and allowing him to lead me into worthwhile, enjoyable activity. Thankfully, he loves me!

But wait, people who are making a difference, people who are movers and shakers are busy, right? Perhaps, but I’m learning that the people I admire, people who accomplish much, are avoiding busyness – they are taming the beast with intentional planning.

Reaching this stage of life is no joke, friends. There is an undeniable reality; life is now fleeting. Nearly every week we hear news of someone we know who has passed into eternity. This verse is speaking to me, bringing me to a place of longing for God’s plan for every day, so much more than my own:

Oh! Teach us to live well! Teach us to live wisely and well! – Psalm 90:12 MSG

So, I’ve been paying attention to smart, Godly people when they speak about time management. I’m searching Scripture. I want to know that I am ready for the next thing, especially if the next thing is meeting Jesus.

Here are four things I’m doing to make sure busyness doesn’t rule my life:

  • Plan. Count the cost, for every yes is a no to something else.“For which of you, desiring to build a tower, does not first sit down and count the cost, whether he has enough to complete it?” ~ Luke 14:28 ESV

    I’ve found that a planner is a great visual; it is easy to see when the squares are filling up and spilling over into each other. I use washi tape and markers emphasize the important days and events, the time that is sacred to me and/or the ones I love. I find myself protecting it, drawing actual borders around those hours and days. Make dates for happiness and keep them.

  • Build margin into your planning. Make room for the unexpected, the divine encounters.“We plan the way we want to live, but only God makes us able to live it.”.~ Prov 16:9 MSG

    When every square is full there is little opportunity for spontaneity. I don’t want to be an inhospitable, unapproachable busy person who doesn’t have time for people.

  • Establish priorities. While some priorities are set (God, Family, Work) the way that we manage them is fluid. Different seasons of life may change your time allocation to each.

    “There is a time for everything,
    and a season for every activity under the heavens…” ~ Eccl 3:1 ESV

    What are your goals? Make sure that you have time set aside to work toward them. Write that list of books you want to read this year in the margin of your planner. List the steps required to reach those ambitious goals. You will do it!
  • Establish an inner circle of friends. Are there so many people texting you that you lose track and don’t respond? Have you offended someone close to you because you just didn’t have time for them?Consider this. The Lord himself invested himself personally in just twelve others. He narrowed that even more to an inner circle of three who were there for him in his darkest hour.

    “Taking along Peter and the two sons of Zebedee, he plunged into an agonizing sorrow. Then he said, “This sorrow is crushing my life out. Stay here and keep vigil with me.” ~ Matt 26:37-38 MSG

    I’m focused on building meaningful relationships with a few. I will be a better friend and will have dear friends to walk with me through the most difficult days. Influence many, but invest in a few ~ that is the example of Christ.

Time is the one of the few resources that is equally granted to each of us. When the master comes, will he be pleased with the way that I invested mine or disappointed in my foolish spending?

Only by the MARVELOUS grace of God,

lorraine


 notdesigner.blogspot.com_logo_facebookPlease visit and “like” the Grace and Graffiti Facebook page here.

And remember, it’s nice to share with your Facebook friends!  Thanks!

But Momma I Dont Want to be Kind

Standard

Phoebe Fish FaceShe was still clutching her lovey. Her long ginger curls were tangled and falling around the shoulders of her nightgown as she quietly entered the room.

Her younger brother, already involved in play, looked up from his cars and loudly exclaimed “Good morning!” She rolled her eyes and kept walking.

Untitled design

Mom was nearby and in a flash she was there, challenging the five year old to find kindness in her heart and respond appropriately to her brother’s greeting.

An epic stand-off ensued. Allowed some time to sit nearby and choose a change of heart, she was not budging.

But Momma was not backing down either.

After a few tears and a stretch of quiet time in her room, she returned and managed to speak to her brother with respect (if not enthusiasm). Momma hugged her briefly and asked what she’d like for breakfast. It was a lesson and it was done.

The stubborn momma is my daughter.

Honestly, I busied myself nearby as I mentally composed a short list of compelling reasons to justify my granddaughter’s annoyance with her autistic brother. It’s honest to say that he is not always easy to deal with. I was privately tempted to defend her response.

But if not at home, where? Where will she learn compassion if not by example and through practice in the safety of her family? Where will she learn to treat outsiders well if she hasn’t learned at home with the ones she loves?

If not now, when? She is most teachable in these formative years.

If not by the teaching of her mother, who? Her momma loves her fiercely, and is her first and best mentor.

Fix these words of mine in your hearts and minds; tie them as symbols on your hands
and bind them on your foreheads.
19 Teach them to your children, talking about them
when you sit at home and when you walk along the road,
when you lie down and when you get up.
Deuteronomy 11:18-19

It would have been easy in the newness of the day to ignore the roll of those blue eyes. There was breakfast and two babies to feed and her coffee was cold again.

But Momma knows…

  • At age 5 her little girl is old enough to know that kindness is a choice.
  • If her daughter doesn’t exercise extending kindness at home, she will struggle with being kind out in the world. She wants her little girl to be the one to say “Come play with me!” to the lonely or the new child in class.
  • There are even times when love is a choice.

This molding of hearts and pointing tiny faces to Jesus is exhausting and no one would have found fault with the omission of consequences just this once.

But momma knows that the hard work is best done early; early in life and when possible, early in the day.

Jesus said, “Let the little children come to me, and do not hinder them,
for the kingdom of heaven belongs to such as these.”
Matthew 19:14

lorraine

 Please visit and “like” the Grace and Graffiti Facebook page here. And remember, it’s nice to share.  Thanks!

facebook_like_logo_1

 

 

 

 

From Out Here: A Grandmother’s View of Autism

Standard

I pen this as an observer; I claim no expertise. I’ve never parented a child with Autism Spectrum Disorder (ASD). I don’t go to therapy appointments, I don’t visit the neurologist or the behavioral specialist and I don’t deal with the inevitable daily challenges of raising a child with a neurological disorder.

However, I love a child with ASD. He’s my grandson.

I also don’t have type 1 diabetes. I don’t prick my finger eight or more times each day to test blood sugar. I don’t position a spring loaded device on my belly and push the button to insert a cannula to deliver insulin – to literally keep me alive. I’ve never woken from a diabetic coma, surrounded by paramedics and feeling rotten. I’ve never been hospitalized with Diabetic Ketoacidosis.

But I love a man who does, who has. He’s my hubby.

It’s been a journey. So here I am, twenty years after his diagnosis, still clumsily discovering how to be an encourager and advocate while maintaining my primary role as wife and lover. I avoid being the “diabetes police” but I’ve said the wrong thing and responded in the worst way when he most needed compassion.

diabetes-528678_1920I cannot express the highs and lows (no pun intended, but it’s so true) of dealing with diabetes. You can do the same things day in and day out and get wildly different results. Just last Saturday, the excitement of finishing a 5k was clouded within minutes when his blood sugar reading was high. There is big potential damage to vital organs from exercising with high blood glucose. But there are so many factors outside of his control, and virtually none within mine. There were many emotions that surged, from aggravation to fear, but the truth is that you just deal with the present. Adjust, course-correct where possible, and keep living life with this person I love with all of my heart. I wouldn’t want it any other way.

ASD makes normally simple things hard for our boy. He struggles with waiting. Changes in routine are upsetting; he doesn’t like to share certain toys and he’s not especially affectionate. Many times he’d rather play alone than with his siblings. Some days are just hard for him to deal with normal stuff.

He’s learning and developing skills to cope through therapy and the efforts of his parents. They are his champions.

 

Watching him run and play outside makes my heart soar. He’s brilliant, this little guy. He loves books – he will sit with anyone who is willing to read. When he is having a good day, he is delightful. His joy is pure and wild and unfiltered.

Since his diagnosis he has made significant progress. I have high hopes for this boy, confident that he will reach his potential because he is surrounded by people committed to building a strong foundation.

So here I am, clumsily discovering how to be an encourager and advocate, while maintaining my role as his grandma and my daughter’s mom. I am not an expert on ASD and I’ve said and done the wrong thing. I’ve responded with impatience when I should have been compassionate. I’ve already made some monumental blunders in dealing with him. Without a doubt, I’ve annoyed his parents by saying the wrong thing or reacting inappropriately to his behavior. I’ve misunderstood and been misunderstood because I didn’t know enough about his symptoms and limitations. We’ve learned to extend grace to him and each other.

I don’t know what our sweet little grandson’s experience will be. I’ve read lots about autism, pretty much everything I can get my hands on; I listen and ask questions of his parents. And what I’ve learned is to expect the unexpected. The things that worked yesterday (or the last time that we were together) don’t always work today. Regression can occur and expectations have to be adjusted. But at the end of every day, the little boy who lies down (possibly after jumping in his bed for a bit) and sings himself to sleep is a gift from God, fearfully and wonderfully created.

I praise you because I am fearfully and wonderfully made; your works are wonderful,
I know that full well. – Psalm 139:14 NIV

May we ever grow in compassion and joy for every life.

April is Autism Awareness month. The Autism Society has issued a challenge of sorts. Awareness has been mostly achieved, so they encourage friends to become partners in the movement toward acceptance and appreciation. During April I’ll share some ways that you can take that next step.

Autism

 Please visit and “like” the Grace and Graffiti Facebook page here. And remember, it’s nice to share.  Thanks!

facebook_like_logo_1