Category Archives: Loving and Supporting a Spouse Who has a Chronic Illness

Are You Decorating a Prison?

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Are You Decorating a Prison?

I settled into the driver’s seat and kissed my sweet hubby goodbye. As I backed out of the driveway, anxiety bubbled up, competing with excitement and anticipation for control of my heart. I spoke a few words aloud to stifle it. “I’m fine. He will be fine. God’s got us.”

I sipped coffee from the Tervis he had handed me moments earlier. The aroma of the caramel liquid mingled with the scent of Polo and I missed him already. Once again anxiety threatened to steal the joy of embarking on a journey I had anticipated for months.

I drove in silence for a bit, considering my penchant for imagining the worst case scenario.

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I’ve never been good at good-byes. As a child, I hid from them, usually in the bathroom linen closet. It wasn’t often that we sent loved ones on their way, but when our Hoosier grandparents loaded the car for the long trek home I was not about to stand on the lawn and watch them drive away. I quietly slipped into my hiding place, where no one was leaving. I couldn’t bear the separation.

I am absolutely sure I didn’t say goodbye when my oldest brother reported to the Navy. As preparations were made for his departure, I withdrew. With every crisply ironed article of his sailor suit readied for packing, my anxiety increased. The world was a scary place and only God knew when I would see my brother again, if ever.

Not many years later, I got married and soon after we began our family. Imagine the joy when we finally bought a brick and mortar house and made a home. I was the mother hen and my chicks were all under my wings.

My husband had noticed that I didn’t handle goodbyes well; more like I didn’t handle them. At all. He couldn’t imagine missing the chance to get a last hug and speak one last expression of love and care.

And then one day he came home with an announcement. His parents were moving to North Carolina. He would be driving the truck with their household belongings and returning home by plane.

Ya’ll, I could not even. I was distraught. Seriously. I was quite certain that I would be widowed when there was either a tragic accident involving the truck or the plane fell from the sky. I was not in the habit of throwing fits, but I threw a good one.

How would I raise our daughter alone? How could his parents think this was reasonable? Why couldn’t everyone just leave us alone in our little bubble?

In retrospect I can see it so clearly; I was a young wife making feeble, yet frantic efforts to tightly wrap my arms around all of my loves and hold them tight. I believed it was up to us to protect our family; in this case it appeared it was up to me, because everyone else had lost their ever-loving minds and thought it was a good idea for my husband to leave us.

I was not being manipulative; I didn’t have a problem with my husband helping his parents. I was genuinely anxious and fearful and wanted to hold my little family together.

Forty-five years later I’m less concerned about a traffic accident than a potentially life-threatening drop in his blood sugar.

But here’s the thing that occurred to me later that evening as I walked into a conference center filled with stunning women, as their voices and mine blended and lifted praise to the Beautiful Name of Jesus. He never called us to live safe and cozy lives. He called us to step into our calling trusting in him alone.

I listened to Jennie Allen share her surrender of “yes” to Him for ANYTHING. I looked around at the vendor booths, filled with women who had started non-profits to support children in foster care and foreign missions. They risked stepping out of safe and cozy because they knew that God was with them in the first step and every one after.

They yoked up with Jesus and heard his voice, “I’ve got this, just get into the unforced rhythm of grace and watch how I do this.”

I had tried to wall us in; my goal was to create a safe and beautiful place for us to hide. The trouble is, those hiding places become “cutely decorated prisons”[1] where we do little or nothing for the kingdom.

You call me out upon the waters
The great unknown where feet may fail
And there I find You in the mystery
In oceans deep my faith will stand.[2]

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 God’s plan is better than hiding in a closet or spinning out of control over what might happen.

The weekend was absolutely perfect. There was so much joy in every part. He is good and He is calling us out to places unknown to us but known perfectly to him. He will be with us in the first step and every one that follows.

“Are you tired? Worn out? Burned out on religion?
Come to me. Get away with me and you’ll recover your life.
I’ll show you how to take a real rest.
Walk with me and work with me—watch how I do it.
Learn the unforced rhythms of grace. I won’t lay anything heavy or ill-fitting on you.
Keep company with me and you’ll learn to live freely and lightly.”
Matthew 11:28-30 ~ The Message

What is he calling you to, my friend? I would love to hear about your faith steps. Where is he taking you? Tell me about it in the comments, won’t you?

Finding the rhythms of grace,

lorraine

 

 

[1] Jennie Allen

[2] Hillsong United Lyrics, Oceans (Where Feet May Fail)

Will I Ever Be Enough?

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Will I Ever Be Enough?

The sound woke me suddenly and my heart was beating fast. Adrenalin was coursing as I identified the source of the alarm. Two vibrations and then a few rising tones meant that my hubby’s blood sugar had exceeded the high threshold and his monitor was alerting.

I laid there in the dark, processing the information for a few minutes and it alarmed again. This time he sat up, insulin pump in hand. He took stock of his number and administered the insulin.

Five minutes later, the alarm sounded again. And five minutes later, and five minutes later….

He dozed beside me but I couldn’t sleep. Now awake, I thought of design ideas for an improvement to the continuous monitoring device. A temporary hold on alarms came to mind; a way to communicate that insulin was delivered, now hush and give it time to work its magic already.

Still awake, my thoughts went to the previous day. It was not a good one for me. Work was fine, home was fine, my commute was fine. I was not. Fine. The tension had been building for weeks.

I reviewed my conversations, my mindset, my attitudes. I regretted spoken words. It had been ugly.

I gave much thought to my husband’s earlier wise counsel over a situation that I was struggling with.

I was filled with regret. I was ashamed and embarrassed. I was truly sorry.

The truth is that I’m overwhelmed. Deadlines missed. People disappointed. Criticism hurled. Expectations dashed. I have a litany of reasons to be disappointed with myself that I recite when I turn the attack inward.

I am as hard on myself as I am on others. “Why did you ever think you could complete a half marathon?” I have guilt and embarrassment over yet another thing that I started and couldn’t finish. Mind you, an arthritic hip is the real demon here, but I’m glad to take a beating over it.

I took stock. I asked myself a question.

“What are you afraid of?”

Immediately, I thought of my every day fears. Lizards. Snakes…most any reptile you can name. But really, those aren’t the things that scare me when I lie awake in the night, when I’m driving my car, or when I sit down to write.

The truth is that I’m afraid that I’m not enough.

When I was expecting my second child (we didn’t know she was a girl – it was the 70’s) I was afraid. I had normal expectant mom fears like birth defects and whether something I ate or something the doctor prescribed might harm my baby.

But my biggest fear? I was afraid that I wouldn’t have enough love for another child.

I loved my firstborn daughter with a love that I had never known. She was our life. I couldn’t wait for her to wake up in the morning and I stood over her crib and watched her sleep at night. There was no way that I had the capacity to love another child like that. This new baby? I feared she would get leftovers. If there were any, that is.

Of course, our second daughter was born and I loved her dearly – she was such a gift to our little family.

That fear was ridiculous but it loomed large and in charge for the better part of eight months (again…the 70’s – I had to actually wait a few weeks to get a pregnancy test at the doctor’s office).

Fear unfounded. God created our hearts with the capacity to love beyond our wildest imaginations.

Back to that alarm in the night…the problem with it was lack of data. The device knew only the number that it was reading. It was not aware of the on-board insulin and therefore didn’t take it into consideration. It continued to act like there was not enough.

Through tears I confess that I am just like that. The fear is real, just like that number. There are plenty of triggers that cause me to be alarmed. There always will be. And I feel despicable. I’m ashamed. I’m afraid that no matter how much I do, how hard I try, I will never be enough. And data is proving it. The world, even good people, even some of the people who love me, will never be fully satisfied with me.

But unlike that device, I know the remedy has already been supplied. There is no need to walk about with anxiety and weariness over feeling I am not enough.

“Others were given in exchange for you. I traded their lives for yours
because you are precious to me. You are honored, and I love you.”
Isaiah 43:4

I recently read these words from Kelly Balarie: “If it wants to beat you, tie you down, and throw you out back for always being despicable, I assure you, it is not God.”[1]

And further, if I constantly find fault with myself, I will not have the confidence to recognize the good in those around me. I will never honestly admire others more than I admire who God designed me to be.

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I wish I had a nice little bow to tie on this post. All figured out. Got it.

The truth is that I’m taking baby steps. I’m reading the words of a trusted mentor and I’m making a choice to walk in faith rather than fear.

He is enough, therefore I am enough…

lorraine

 

What fear are you struggling with today? I pray that you too, can begin to walk in faith and I highly recommend you join me on my fear-fighting expedition.

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About the book, Fear Fighting, Awakening the Courage to Overcome Your Fears:

Author and Speaker, Kelly Balarie didn’t always fight fear – for a large part of her life, she was controlled by it. Yet, in her book, Fear Fighting: Awakening Courage to Overcome Your Fears, with God, Kelly charts a new course. Join Kelly, on the journey to go and grow with Christ’s bravery, the Spirit’s counsel and God’s unending love that squelches fear. This book reads like a love letter from God, while offering practical heart-calming prayers, anxiety-reducing tips, and courage-building decrees that will transform your day.

 

About Kelly Balarie:

Kelly is both a Cheerleader of Faith and a Fighter of Fear. She leans on the power of God, rests on the shoulder of Christ, and discovers how to glow in the dark places of life. Get all Kelly’s blog posts by email or visit her on her blog, Purposeful Faith. You can also find a variety of resources for your fight against fear at http://www.fearfightingbook.com/.

 

[1] Quote from: Fear Fighting – awakening courage to OVERCOME your fears, by Kelly  Balarie

From Out Here: A Grandmother’s View of Autism

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I pen this as an observer; I claim no expertise. I’ve never parented a child with Autism Spectrum Disorder (ASD). I don’t go to therapy appointments, I don’t visit the neurologist or the behavioral specialist and I don’t deal with the inevitable daily challenges of raising a child with a neurological disorder.

However, I love a child with ASD. He’s my grandson.

I also don’t have type 1 diabetes. I don’t prick my finger eight or more times each day to test blood sugar. I don’t position a spring loaded device on my belly and push the button to insert a cannula to deliver insulin – to literally keep me alive. I’ve never woken from a diabetic coma, surrounded by paramedics and feeling rotten. I’ve never been hospitalized with Diabetic Ketoacidosis.

But I love a man who does, who has. He’s my hubby.

It’s been a journey. So here I am, twenty years after his diagnosis, still clumsily discovering how to be an encourager and advocate while maintaining my primary role as wife and lover. I avoid being the “diabetes police” but I’ve said the wrong thing and responded in the worst way when he most needed compassion.

diabetes-528678_1920I cannot express the highs and lows (no pun intended, but it’s so true) of dealing with diabetes. You can do the same things day in and day out and get wildly different results. Just last Saturday, the excitement of finishing a 5k was clouded within minutes when his blood sugar reading was high. There is big potential damage to vital organs from exercising with high blood glucose. But there are so many factors outside of his control, and virtually none within mine. There were many emotions that surged, from aggravation to fear, but the truth is that you just deal with the present. Adjust, course-correct where possible, and keep living life with this person I love with all of my heart. I wouldn’t want it any other way.

ASD makes normally simple things hard for our boy. He struggles with waiting. Changes in routine are upsetting; he doesn’t like to share certain toys and he’s not especially affectionate. Many times he’d rather play alone than with his siblings. Some days are just hard for him to deal with normal stuff.

He’s learning and developing skills to cope through therapy and the efforts of his parents. They are his champions.

 

Watching him run and play outside makes my heart soar. He’s brilliant, this little guy. He loves books – he will sit with anyone who is willing to read. When he is having a good day, he is delightful. His joy is pure and wild and unfiltered.

Since his diagnosis he has made significant progress. I have high hopes for this boy, confident that he will reach his potential because he is surrounded by people committed to building a strong foundation.

So here I am, clumsily discovering how to be an encourager and advocate, while maintaining my role as his grandma and my daughter’s mom. I am not an expert on ASD and I’ve said and done the wrong thing. I’ve responded with impatience when I should have been compassionate. I’ve already made some monumental blunders in dealing with him. Without a doubt, I’ve annoyed his parents by saying the wrong thing or reacting inappropriately to his behavior. I’ve misunderstood and been misunderstood because I didn’t know enough about his symptoms and limitations. We’ve learned to extend grace to him and each other.

I don’t know what our sweet little grandson’s experience will be. I’ve read lots about autism, pretty much everything I can get my hands on; I listen and ask questions of his parents. And what I’ve learned is to expect the unexpected. The things that worked yesterday (or the last time that we were together) don’t always work today. Regression can occur and expectations have to be adjusted. But at the end of every day, the little boy who lies down (possibly after jumping in his bed for a bit) and sings himself to sleep is a gift from God, fearfully and wonderfully created.

I praise you because I am fearfully and wonderfully made; your works are wonderful,
I know that full well. – Psalm 139:14 NIV

May we ever grow in compassion and joy for every life.

April is Autism Awareness month. The Autism Society has issued a challenge of sorts. Awareness has been mostly achieved, so they encourage friends to become partners in the movement toward acceptance and appreciation. During April I’ll share some ways that you can take that next step.

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